BUT even though I was trying to not use my little sandbox as a place to rant or proselytize to the already converted, I think I need a little cathartic release. I really hoped to just straight up work on transferring my storytelling, and hopefully I'll knock a few out.
Cancer sucks. Having a rare cancer sucks even more, and if you are in the USA, you are straight up screwed. My abnormal cell growth is red blood cells. The symptoms are heart attacks, blood clots, and strokes; so your first sign of danger might be your death. I've had a rough year. Heart attacks I can deal with, since they're not like bad diet caused blockage heart attacks. My blood just gets thick to the point where it's like pumping Jello. I've learned to give myself CPR, so I survive the random 3 to 6 heart attacks a DAY, but it's starting to show signs of wearing out my ticker. I had my second stroke this year (luckily no damage) and my 8th pulmonary embolism. The last one pissed me off because it was totally caused by my doctors not listening to me. They forget that I've been dealing with this for at least 7 years now, and they just Googled it the day they met me, so I have learned more about it than they can catch up on. They've scheduled me for unnecessary procedures that have already been done where it's flat out impossible to get different results. They've suggested giving me a form of chemo that would flip it to the other end of the blood cancer spectrum to 100% fatal leukemia. I don't know if they refuse to read my chart, or just straight up don't know how to read, but neither quality is acceptable from someone who I have sought out for help. I think the worst part is I can't go somewhere else, because I'll still be in the same network and my chart will follow me, which by now is just filled with notes from incompetent assholes.
So thanks for letting me bitch, and I really hope I have another bounce back in me.
I need you to be well so keep advocating for yourself. Bitch whenever you need to.